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This talk was given at the Patients as Partners 2018 Meeting
There are many frameworks and models that exist from various organizations on aspects of patient engagement and may be challenging to navigate through when applying to your own initiatives. In this session, Takeda will walk the audience through how they used multiple patient engagement frameworks to create an internal R&D Patient Engagement Guide tailored for their drug development teams from discovery through marketed products. The audience will learn how the guide has help build support and a cultural shift for Takeda’s internal patient engagement initiatives and how it has helped each team at various phases of development with the following:
• Identifying what the patient engagement activities are at the different phases of development • How does patient engagement apply to the work I am doing? • Identifying who is relevant to talk to, how to go about it • What is the impact?
• Mapping the patient advocacy landscape • Identifying what all the ways are that teams can learn from patients • What you need to understand about patient advocacy groups before engaging with them • How to initiate relationships with patient advocacy • Understanding where patients fit in your development, where online communities fit in, etc
• Implementing change and streamlining patient engagement initiatives internally • Identifying each team’s key patient engagement issues • Training teams on creating and documenting patient engagement plans • Demonstrating how to integrate patient engagement plans with overall development plans • Helping initiate activities
Carol Meyer, R&D Patient Engagement Lead, Takeda Pharmaceuticals