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Tuesday, January 12, 2016 - 3:30 pm PST/6:30 pm EST
Huntington's Disease Care Posted January 10, 2016 by LaVonne Veatch Goodman, M.D.
There have been a number of studies about the impact and burden of Huntington's disease (HD) on both those affected and their family carers. Though there are many other factors, the major recurring theme boils down to "lack of care". This includes lack of access to HD subspecialty medical care, lack of community medical or service provider knowledge about HD, and lack of support for family or other carers. It is unfortunate that the magnitude of burden imposed by "lack of care" for HD has not substantially changed over the two decades or so covered in these studies.
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