Another Resource for Huntington's and Juvenile Huntington's Disease: GeneFo

Neer Ziskind is the CEO and co-founder, along with geneticist Dr.Yael Wilnai, of GeneFo. GeneFo was created as a solution to patients and medical experts wishing to connect and enrich their understanding of their condition, how to better manage it, and get the most up-to-date information on new treatments and clinical trials. Neer will share with us how GeneFo works and why you should set up a GeneFo account. Registration is FREE, and once you set up an account, you will have access to all the resources featured on the website. The mobile app, available on iTures, is described thus: "Simply choose your condition, and start comparing your symptoms or medication to other patients like you, and see if they have more efficient treatments and drugs! You will also get complete and free access to:

• A physician's directory (doctors, researchers, hospitals) that patients are rating, so you know who are the best practitioners in your area
• Medical advice: No more scrolling through PubMed or WebMd- Simply ask your questions, and experts in your condition will answer, and provide online lectures and videos
• Share with your peers: in addition to experts, fellow patients and caregivers will offer invaluable support and advice
• Manage your health information: Track your symptoms, treatments and well being over time, so you get a report with trends and recommendation about more efficient treatments. Share it with your doctor to improve your care!
• Clinical trials matching: Get access to the most innovative treatments years before they are commercially available, by getting matched to FDA approved trials in your area."

To join the community, go to https://www.genefo.com/signup_regular/help4hd and create an account. We'd love for you to join us